Introduction

The Danish Core Patient profile is intended to encapsulate the most common and basic data model of patients in danish healthcare systems covering both primary sector (GP’s), secondary sector (specialty doctors and hospitals) and municipality cases. As such the profile should be usable in most danish contexts.

Use of patient identifiers

This patient profile currently only reflects the use of the established national danish patient identifiers called CPR. More official identifiers are expected to be used and profiled in the future, eg:

• eID
• Official replacement CPR numbers
• catastrophe CPR numbers.

Use of security label on patients

Danish citizens that have requested name and address protection (Navne- og adressebeskyttelse) should be labeled with the security label as follows:

 <Patient xmlns="http://hl7.org/fhir">
  <meta>
    <security>
      <system value="http://terminology.hl7.org/CodeSystem/v3-Confidentiality"/>
      <code value="R"/>
      <display value="Restricted"/>
    </security>
  </meta>
...  [snip] ...
</Patient>

Use of this label should be interpreted according to the law, rouhgly meaning that only personnel using systems in public/official affairs are allowed to see name and address for the patient/citizen.

• Text Summary
• Differential Table
• Snapshot Table
• Snapshot Table (Must Support)
• All

This structure is derived from Patient

Name	Flags	Card.	Type	Description & Constraints
Patient	C	0..*	Patient	Information about an individual or animal receiving health care services
Slices for identifier		1..*	Identifier	An identifier for this patient Slice: Unordered, Open by value:system
identifier:cpr		0..1	DkCoreCprIdentifier	An identifier intended for computation
Slices for name		0..*	HumanName	A name associated with the patient Slice: Unordered, Open by value:use
name:official		0..1	HumanName	A name associated with the patient
use		1..1	code	usual | official | temp | nickname | anonymous | old | maiden Fixed Value: official
family		1..1	string	Family name (often called 'Surname')
address		0..*	Address	An address for the individual
municipalityCode		0..1	CodeableConcept	Danish Core Municipality codes URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-municipalityCodes
regionalSubDivisionCodes		0..1	CodeableConcept	Danish Core Regional Sub Division Codes Extension URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-RegionalSubDivisionCodes
maritalStatus		0..1	CodeableConcept	Marital (civil) status of a patient Binding: DK MaritalStatus (extensible)
Slices for generalPractitioner		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider Slice: Unordered, Open by value:identifier.system
generalPractitioner:referencedSORUnit		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider
identifier		0..1	SORIdentifier	An identifier intended for computation
Documentation for this format

Name	Flags	Card.	Type	Description & Constraints
Patient	C	0..*	Patient	Information about an individual or animal receiving health care services
id	Σ	0..1	id	Logical id of this artifact
meta	Σ	0..1	Meta	Metadata about the resource
implicitRules	?!Σ	0..1	uri	A set of rules under which this content was created
language		0..1	code	Language of the resource content Binding: CommonLanguages (preferred): A human language. Additional Bindings Purpose AllLanguages Max Binding
text		0..1	Narrative	Text summary of the resource, for human interpretation
contained		0..*	Resource	Contained, inline Resources
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!	0..*	Extension	Extensions that cannot be ignored
Slices for identifier	Σ	1..*	Identifier	An identifier for this patient Slice: Unordered, Open by value:system
identifier:cpr		0..1	DkCoreCprIdentifier	An identifier intended for computation
active	?!Σ	0..1	boolean	Whether this patient's record is in active use
Slices for name	Σ	0..*	HumanName	A name associated with the patient Slice: Unordered, Open by value:use
name:official	Σ	0..1	HumanName	A name associated with the patient
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations Slice: Unordered, Open by value:url
use	?!Σ	1..1	code	usual | official | temp | nickname | anonymous | old | maiden Binding: NameUse (required): The use of a human name. Fixed Value: official
text	Σ	0..1	string	Text representation of the full name
family	Σ	1..1	string	Family name (often called 'Surname')
given	Σ	0..*	string	Given names (not always 'first'). Includes middle names This repeating element order: Given Names appear in the correct order for presenting the name
prefix	Σ	0..*	string	Parts that come before the name This repeating element order: Prefixes appear in the correct order for presenting the name
suffix	Σ	0..*	string	Parts that come after the name This repeating element order: Suffixes appear in the correct order for presenting the name
period	Σ	0..1	Period	Time period when name was/is in use
telecom	Σ	0..*	ContactPoint	A contact detail for the individual
gender	Σ	0..1	code	male | female | other | unknown Binding: AdministrativeGender (required): The gender of a person used for administrative purposes.
birthDate	Σ	0..1	date	The date of birth for the individual
deceased[x]	?!Σ	0..1		Indicates if the individual is deceased or not
deceasedBoolean			boolean
deceasedDateTime			dateTime
address	Σ	0..*	Address	An address for the individual
id		0..1	string	Unique id for inter-element referencing
Slices for extension		0..*	Extension	Additional content defined by implementations Slice: Unordered, Open by value:url
municipalityCode		0..1	CodeableConcept	Danish Core Municipality codes URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-municipalityCodes
regionalSubDivisionCodes		0..1	CodeableConcept	Danish Core Regional Sub Division Codes Extension URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-RegionalSubDivisionCodes
use	?!Σ	0..1	code	home | work | temp | old | billing - purpose of this address Binding: AddressUse (required): The use of an address. Example General: home
type	Σ	0..1	code	postal | physical | both Binding: AddressType (required): The type of an address (physical / postal). Example General: both
text	Σ	0..1	string	Text representation of the address Example General: 137 Nowhere Street, Erewhon 9132
line	Σ	0..*	string	Street name, number, direction & P.O. Box etc. This repeating element order: The order in which lines should appear in an address label Example General: 137 Nowhere Street
city	Σ	0..1	string	Name of city, town etc. Example General: Erewhon
district	Σ	0..1	string	District name (aka county) Example General: Madison
state	Σ	0..1	string	Sub-unit of country (abbreviations ok)
postalCode	Σ	0..1	string	Postal code for area Example General: 9132
country	Σ	0..1	string	Country (e.g. can be ISO 3166 2 or 3 letter code)
period	Σ	0..1	Period	Time period when address was/is in use Example General: {"start":"2010-03-23","end":"2010-07-01"}
maritalStatus		0..1	CodeableConcept	Marital (civil) status of a patient Binding: DK MaritalStatus (extensible)
multipleBirth[x]		0..1		Whether patient is part of a multiple birth
multipleBirthBoolean			boolean
multipleBirthInteger			integer
photo		0..*	Attachment	Image of the patient
contact	C	0..*	BackboneElement	A contact party (e.g. guardian, partner, friend) for the patient
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
relationship		0..*	CodeableConcept	The kind of relationship Binding: PatientContactRelationship (extensible): The nature of the relationship between a patient and a contact person for that patient.
name		0..1	HumanName	A name associated with the contact person
telecom		0..*	ContactPoint	A contact detail for the person
address		0..1	Address	Address for the contact person
gender		0..1	code	male | female | other | unknown Binding: AdministrativeGender (required): The gender of a person used for administrative purposes.
organization	C	0..1	Reference(Organization)	Organization that is associated with the contact
period		0..1	Period	The period during which this contact person or organization is valid to be contacted relating to this patient
communication		0..*	BackboneElement	A language which may be used to communicate with the patient about his or her health
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
language		1..1	CodeableConcept	The language which can be used to communicate with the patient about his or her health Binding: CommonLanguages (preferred): A human language. Additional Bindings Purpose AllLanguages Max Binding
preferred		0..1	boolean	Language preference indicator
Slices for generalPractitioner		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider Slice: Unordered, Open by value:identifier.system
generalPractitioner:referencedSORUnit		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations Slice: Unordered, Open by value:url
reference	ΣC	0..1	string	Literal reference, Relative, internal or absolute URL
type	Σ	0..1	uri	Type the reference refers to (e.g. "Patient") Binding: ResourceType (extensible): Aa resource (or, for logical models, the URI of the logical model).
identifier		0..1	SORIdentifier	An identifier intended for computation
display	Σ	0..1	string	Text alternative for the resource
managingOrganization	Σ	0..1	Reference(Organization)	Organization that is the custodian of the patient record
link	?!Σ	0..*	BackboneElement	Link to another patient resource that concerns the same actual person
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
other	Σ	1..1	Reference(Patient | RelatedPerson)	The other patient or related person resource that the link refers to
type	Σ	1..1	code	replaced-by | replaces | refer | seealso Binding: LinkType (required): The type of link between this patient resource and another patient resource.
Documentation for this format

Name	Flags	Card.	Type	Description & Constraints
Patient	C	0..*	Patient	Information about an individual or animal receiving health care services
Documentation for this format

This structure is derived from Patient

Summary

Mandatory: 1 element (2 nested mandatory elements)
Fixed Value: 1 element

Structures

This structure refers to these other structures:

• Danish Central Person Register (CPR) Identifier (http://hl7.dk/fhir/core/StructureDefinition/dk-core-cpr-identifier)
• SOR Identifier (http://hl7.dk/fhir/core/StructureDefinition/dk-core-sor-identifier)

Extensions

This structure refers to these extensions:

• http://hl7.dk/fhir/core/StructureDefinition/dk-core-municipalityCodes
• http://hl7.dk/fhir/core/StructureDefinition/dk-core-RegionalSubDivisionCodes

Slices

This structure defines the following Slices:

• The element Patient.identifier is sliced based on the value of value:system
• The element Patient.name is sliced based on the value of value:use
• The element Patient.generalPractitioner is sliced based on the value of value:identifier.system

Differential View

This structure is derived from Patient

Name	Flags	Card.	Type	Description & Constraints
Patient	C	0..*	Patient	Information about an individual or animal receiving health care services
Slices for identifier		1..*	Identifier	An identifier for this patient Slice: Unordered, Open by value:system
identifier:cpr		0..1	DkCoreCprIdentifier	An identifier intended for computation
Slices for name		0..*	HumanName	A name associated with the patient Slice: Unordered, Open by value:use
name:official		0..1	HumanName	A name associated with the patient
use		1..1	code	usual | official | temp | nickname | anonymous | old | maiden Fixed Value: official
family		1..1	string	Family name (often called 'Surname')
address		0..*	Address	An address for the individual
municipalityCode		0..1	CodeableConcept	Danish Core Municipality codes URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-municipalityCodes
regionalSubDivisionCodes		0..1	CodeableConcept	Danish Core Regional Sub Division Codes Extension URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-RegionalSubDivisionCodes
maritalStatus		0..1	CodeableConcept	Marital (civil) status of a patient Binding: DK MaritalStatus (extensible)
Slices for generalPractitioner		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider Slice: Unordered, Open by value:identifier.system
generalPractitioner:referencedSORUnit		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider
identifier		0..1	SORIdentifier	An identifier intended for computation
Documentation for this format

Snapshot View

Name	Flags	Card.	Type	Description & Constraints
Patient	C	0..*	Patient	Information about an individual or animal receiving health care services
id	Σ	0..1	id	Logical id of this artifact
meta	Σ	0..1	Meta	Metadata about the resource
implicitRules	?!Σ	0..1	uri	A set of rules under which this content was created
language		0..1	code	Language of the resource content Binding: CommonLanguages (preferred): A human language. Additional Bindings Purpose AllLanguages Max Binding
text		0..1	Narrative	Text summary of the resource, for human interpretation
contained		0..*	Resource	Contained, inline Resources
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!	0..*	Extension	Extensions that cannot be ignored
Slices for identifier	Σ	1..*	Identifier	An identifier for this patient Slice: Unordered, Open by value:system
identifier:cpr		0..1	DkCoreCprIdentifier	An identifier intended for computation
active	?!Σ	0..1	boolean	Whether this patient's record is in active use
Slices for name	Σ	0..*	HumanName	A name associated with the patient Slice: Unordered, Open by value:use
name:official	Σ	0..1	HumanName	A name associated with the patient
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations Slice: Unordered, Open by value:url
use	?!Σ	1..1	code	usual | official | temp | nickname | anonymous | old | maiden Binding: NameUse (required): The use of a human name. Fixed Value: official
text	Σ	0..1	string	Text representation of the full name
family	Σ	1..1	string	Family name (often called 'Surname')
given	Σ	0..*	string	Given names (not always 'first'). Includes middle names This repeating element order: Given Names appear in the correct order for presenting the name
prefix	Σ	0..*	string	Parts that come before the name This repeating element order: Prefixes appear in the correct order for presenting the name
suffix	Σ	0..*	string	Parts that come after the name This repeating element order: Suffixes appear in the correct order for presenting the name
period	Σ	0..1	Period	Time period when name was/is in use
telecom	Σ	0..*	ContactPoint	A contact detail for the individual
gender	Σ	0..1	code	male | female | other | unknown Binding: AdministrativeGender (required): The gender of a person used for administrative purposes.
birthDate	Σ	0..1	date	The date of birth for the individual
deceased[x]	?!Σ	0..1		Indicates if the individual is deceased or not
deceasedBoolean			boolean
deceasedDateTime			dateTime
address	Σ	0..*	Address	An address for the individual
id		0..1	string	Unique id for inter-element referencing
Slices for extension		0..*	Extension	Additional content defined by implementations Slice: Unordered, Open by value:url
municipalityCode		0..1	CodeableConcept	Danish Core Municipality codes URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-municipalityCodes
regionalSubDivisionCodes		0..1	CodeableConcept	Danish Core Regional Sub Division Codes Extension URL: http://hl7.dk/fhir/core/StructureDefinition/dk-core-RegionalSubDivisionCodes
use	?!Σ	0..1	code	home | work | temp | old | billing - purpose of this address Binding: AddressUse (required): The use of an address. Example General: home
type	Σ	0..1	code	postal | physical | both Binding: AddressType (required): The type of an address (physical / postal). Example General: both
text	Σ	0..1	string	Text representation of the address Example General: 137 Nowhere Street, Erewhon 9132
line	Σ	0..*	string	Street name, number, direction & P.O. Box etc. This repeating element order: The order in which lines should appear in an address label Example General: 137 Nowhere Street
city	Σ	0..1	string	Name of city, town etc. Example General: Erewhon
district	Σ	0..1	string	District name (aka county) Example General: Madison
state	Σ	0..1	string	Sub-unit of country (abbreviations ok)
postalCode	Σ	0..1	string	Postal code for area Example General: 9132
country	Σ	0..1	string	Country (e.g. can be ISO 3166 2 or 3 letter code)
period	Σ	0..1	Period	Time period when address was/is in use Example General: {"start":"2010-03-23","end":"2010-07-01"}
maritalStatus		0..1	CodeableConcept	Marital (civil) status of a patient Binding: DK MaritalStatus (extensible)
multipleBirth[x]		0..1		Whether patient is part of a multiple birth
multipleBirthBoolean			boolean
multipleBirthInteger			integer
photo		0..*	Attachment	Image of the patient
contact	C	0..*	BackboneElement	A contact party (e.g. guardian, partner, friend) for the patient
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
relationship		0..*	CodeableConcept	The kind of relationship Binding: PatientContactRelationship (extensible): The nature of the relationship between a patient and a contact person for that patient.
name		0..1	HumanName	A name associated with the contact person
telecom		0..*	ContactPoint	A contact detail for the person
address		0..1	Address	Address for the contact person
gender		0..1	code	male | female | other | unknown Binding: AdministrativeGender (required): The gender of a person used for administrative purposes.
organization	C	0..1	Reference(Organization)	Organization that is associated with the contact
period		0..1	Period	The period during which this contact person or organization is valid to be contacted relating to this patient
communication		0..*	BackboneElement	A language which may be used to communicate with the patient about his or her health
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
language		1..1	CodeableConcept	The language which can be used to communicate with the patient about his or her health Binding: CommonLanguages (preferred): A human language. Additional Bindings Purpose AllLanguages Max Binding
preferred		0..1	boolean	Language preference indicator
Slices for generalPractitioner		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider Slice: Unordered, Open by value:identifier.system
generalPractitioner:referencedSORUnit		0..*	Reference(Organization | Practitioner | PractitionerRole)	Patient's nominated primary care provider
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations Slice: Unordered, Open by value:url
reference	ΣC	0..1	string	Literal reference, Relative, internal or absolute URL
type	Σ	0..1	uri	Type the reference refers to (e.g. "Patient") Binding: ResourceType (extensible): Aa resource (or, for logical models, the URI of the logical model).
identifier		0..1	SORIdentifier	An identifier intended for computation
display	Σ	0..1	string	Text alternative for the resource
managingOrganization	Σ	0..1	Reference(Organization)	Organization that is the custodian of the patient record
link	?!Σ	0..*	BackboneElement	Link to another patient resource that concerns the same actual person
id		0..1	string	Unique id for inter-element referencing
extension		0..*	Extension	Additional content defined by implementations
modifierExtension	?!Σ	0..*	Extension	Extensions that cannot be ignored even if unrecognized
other	Σ	1..1	Reference(Patient | RelatedPerson)	The other patient or related person resource that the link refers to
type	Σ	1..1	code	replaced-by | replaces | refer | seealso Binding: LinkType (required): The type of link between this patient resource and another patient resource.
Documentation for this format

Note: feedback is most welcome and should be directed to the danish affiliate’s github repository (https://github.com/hl7dk/dk-core/).